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The CHC Podcast: CHD Conversations
Anna Jaworski
34 episodes
1 week ago
The CHC Podcast: Congenital Heart Conversations is a podcast for and by the CHD community. Hosted by heart mom Anna Jaworski and The CHC Podcast Team, they will talk with people about a variety of topics of interest when living with a life-threatening chronic illness.

Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-chd-conversations--5779157/support.
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Medicine
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All content for The CHC Podcast: CHD Conversations is the property of Anna Jaworski and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The CHC Podcast: Congenital Heart Conversations is a podcast for and by the CHD community. Hosted by heart mom Anna Jaworski and The CHC Podcast Team, they will talk with people about a variety of topics of interest when living with a life-threatening chronic illness.

Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-chd-conversations--5779157/support.
Show more...
Medicine
Kids & Family,
Society & Culture,
Health & Fitness
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End-of-Life Planning for Congenital Heart Patients
The CHC Podcast: CHD Conversations
57 minutes
10 months ago
End-of-Life Planning for Congenital Heart Patients
Imagine having a heart condition and facing the daunting task of end-of-life planning—this is the reality that Ayrton Beatty, Megan Tones, and John Latsha bravely discuss on our latest CHC Podcast: Congenital Heart Conversations episode. Join us as John shares his compelling journey living with tetralogy of Fallot and the life-saving role of his implantable cardioverter device (ICD). We delve into the critical importance of MRI compatibility and the proactive steps necessary to maintain a high quality of life for those with congenital heart defects. Hear firsthand experiences and invaluable insights into navigating the complexities of medical and legal preparations.

Our conversation takes a deep dive into the legal intricacies of end-of-life documents across regions like Scotland, the UK, Australia, and the US. Together, we unravel the tangled web of wills, advance health directives, and DNR orders. Learn about the regional challenges, such as the NHS's medical record systems, and the relief that comes from having these documents in place ahead of time. Our guests share practical strategies for managing end-of-life documents in hospitals, emphasizing the stress relief that legal preparedness provides during critical moments.

The emotional and practical aspects of end-of-life discussions come to the forefront in this episode. Ayrton shares a unique vision for a non-traditional celebration of life, while John opens up about his candid conversations with his wife regarding cremation plans. We explore the cultural reluctance to discuss mortality and the peace that comes with organizing personal belongings and curating family history. Inspired by Swedish death cleaning and Marie Kondo, this episode encourages you to embrace end-of-life planning as an opportunity to share your legacy and ensure your wishes are honored across different healthcare systems.

Helpful Links (this is not medical or legal advice -- just some helpful places to get started on your own end-of-life planning. Always consult with a professional to get the most appropriate advice for your situation.
 
Free forms for USA citizens: https://www.freewill.com
Free information for UK citizens: https://www.amnesty.org.uk/free-wills-service
Information for Australians: https://australianwillkits.com.au/ -- cheap affordable legal documents

Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-chd-conversations--5779157/support.
The CHC Podcast: CHD Conversations
The CHC Podcast: Congenital Heart Conversations is a podcast for and by the CHD community. Hosted by heart mom Anna Jaworski and The CHC Podcast Team, they will talk with people about a variety of topics of interest when living with a life-threatening chronic illness.

Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-chd-conversations--5779157/support.