We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.
Throughout each episode you will hear from members of the CF community, researchers, and clinicians.
This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more.
On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.
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We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.
Throughout each episode you will hear from members of the CF community, researchers, and clinicians.
This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more.
On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.
In this episode, Raphael has a thought-provoking conversation with Genevieve Handley (Executive Manager of Policy and Advocacy at CF Together) and Gloria Lancione (patient advocate for people with cystic fibrosis) about the importance of self-advocacy.They discuss their personal journeys, the people who inspired them, and how they found their voices in advocacy. Later, Kelly Exner (Clinical Services Manager at CF Together) shares practical steps for advocating for yourself, offering insights on navigating healthcare and beyond.If you would like to share your thoughts or have suggested topics for the podcast, we would love to hear from you. Please drop us line at communications@cftogether.org.au.If you have found the content valuable, don't forget to subscribe, rate and review.
The CF Together Podcast
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.
Throughout each episode you will hear from members of the CF community, researchers, and clinicians.
This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more.
On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.