
Skyler Jackson, Qualitative Research Specialist, talks about the importance of recognizing individuals who have made a real and meaningful difference to groups and to individual patients/families impacted by rare diseases. From initiatives impacting national policy to providing a much-needed break for families of newly diagnosed patients, Skyler shares stories of "unsung heroes" and how the Rare Disease Difference Maker® project has been created to recognize their efforts. Tune in and learn how you can help make a difference in rare diseases!
To nominate someone for the Rare Disease Difference Maker Program visit this link: https://www.engagehealth.com/survey/TakeSurvey.aspx?PageNumber=1&SurveyID=p24K5n8&Preview=true#