Anne Rugari is the founder of the Partners for Krabbe Research and a consultant for the NDRD Brain and Tissue Bank, a biorepository of sorts that harvests brains and tissues of neurodegenerative or neurodevelopmental brains for research. She started the foundation in 2012 after her two children were diagnosed with Krabbe disease and her daughter was the fourth newborn to receive treatment for the disease. To date, 18 patients have donated to the Brain and Tissue Bank, and three peer-reviewed manuscripts have been published to help translate research into treatment. Additionally, Anne is a prominent advocate for Krabbe research, more information on which can be found on Krabbes.org.