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Rare Disease Day Series: Australian Pompe Association
The Alike WA Podcast Series
26 minutes 40 seconds
2 years ago
Rare Disease Day Series: Australian Pompe Association
In recognition of Rare Disease Day, our staff member Emily had the pleasure of catching up with Renee Brown, Secretary for the Australian Pompe Association. Renee speaks about Pompe, its daily challenges, and the importance of raising awareness of rare conditions.
To learn more about Pompe and support available, contact Renee at secretary@australianpompe.org.au.
To find out about peer Support Groups in WA, contact ConnectGroups at info@connectgroups.org.au.