Jeremy and Jillian Hinskton, artists and co-founders of HS Warrior Stories, join Janelle on That’s Derm Good! to share how their personal journey with hidradenitis suppurativa (HS) became a mission to raise awareness and build community worldwide.

Jeremy was diagnosed with HS in 2015 and, by 2020, the disease left him bedridden for nearly a year. During that time, he lost his ability to play music, create art, and even perform daily tasks, until the couple decided to take their pain and transform it into purpose. With Jillian’s background in corporate leadership and Jeremy’s talents in music, photography, and videography, they founded HS Warrior Stories, a storytelling platform that highlights not only the struggles but also the passions and resilience of people living with HS.

DISCLAIMER: This podcast is for informational purposes only and should not be considered medical or health advice. This podcast does not substitute medical treatment. Always consult a doctor or dermatologist regarding medical advice, diagnoses, or treatment.

In this episode, Jeremy and Jillian Hinskton open up about the realities of navigating treatment, from insurance denials to traveling internationally without access to necessary medication. Jillian shares her perspective as a caregiver, underscoring the often-overlooked need for caregiver support and self-care. Together, they describe the challenges of building a life around a condition that can derail plans at any moment, and how choosing to “architect a life they love” has been essential.

The Hinsktons also talk about the evolution of HS Warrior Stories, which has grown from a personal project into a global advocacy platform. They explain how their interviews showcase both the personal stories and the passions of HS warriors, reminding people that they are defined not by their condition, but by their creativity, resilience, and joy.

This inspiring episode is a testament to the power of storytelling, love, and advocacy. Jeremy and Jillian remind us that no matter the challenges, community and passion can help redefine the narrative around chronic illness.

This episode is produced by Skip The Boring Stuff, a podcast strategy company for business owners and creatives.