Smiles Included: Navigating through life with our rare disease superheroes
Emily Beauclair
16 episodes
8 months ago
Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
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Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
Sherri Blaik: Demystifying the ABA experience and other therapies that have benefitted her SKDEAS daughter
Smiles Included: Navigating through life with our rare disease superheroes
42 minutes
3 years ago
Sherri Blaik: Demystifying the ABA experience and other therapies that have benefitted her SKDEAS daughter
For those of you at the family conference, you definitely remember meeting Allie as she led us in some of the dance parties. Her mom joins us for this latest podcast to discuss the therapies that have worked for Allie throughout the years, including ABA therapy. I've had a lot of questions about ABA, so Sherri walked me through what the therapy looked like for Allie and how it helped in overall development. I hope you find this interview as helpful as I did! skdeas.org Plea...
Smiles Included: Navigating through life with our rare disease superheroes
Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
