Smiles Included: Navigating through life with our rare disease superheroes
Emily Beauclair
16 episodes
8 months ago
Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
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Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
Jackie and Eddy Jones: A rare disease journey of hope, resilience and vulnerability.....and a golf tournament!
Smiles Included: Navigating through life with our rare disease superheroes
1 hour 5 minutes
2 years ago
Jackie and Eddy Jones: A rare disease journey of hope, resilience and vulnerability.....and a golf tournament!
Today, we're shining a light on a family's journey with their SKDEAS kid and the strength that it has carved out in them. Meet Jackie and Eddie Jones, the remarkable parents of Travis, who open their hearts to us about their path to diagnosis, the challenges they've faced, and the bonds they've built. We journey with Jackie and Eddie as they navigate the complexities surrounding Travis's diagnosis. We unpack the medical challenges, such as tracheomalacia and eosinophilic esophagitis, t...
Smiles Included: Navigating through life with our rare disease superheroes
Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
