Smiles Included: Navigating through life with our rare disease superheroes
Emily Beauclair
16 episodes
8 months ago
Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
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Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
Bailey Wallace: The sibling experience and being at peace with the diagnosis.
Smiles Included: Navigating through life with our rare disease superheroes
45 minutes
3 years ago
Bailey Wallace: The sibling experience and being at peace with the diagnosis.
The family conference was two weeks ago and it was amazing! My theory is that siblings of special needs children are amazing human beings and my guest on the podcast, Bailey Wallace, proves that to be a fact. She has a daughter with SKDEAS, plus two other kids that are extremely supportive. She talks through the exhaustive job of balancing life with three kids and ensuring they all lead full lives. Bailey may be the most positive person i've spoken to about this diagn...
Smiles Included: Navigating through life with our rare disease superheroes
Get ready for an inspiring episode of the Smiles Included Podcast as we welcome back Cynthia Lang. She returns with a heartfelt update on her ongoing quest to find a treatment for her son, Sebastian, and shares exciting news about the Skraban-Deardorff Syndrome Foundation's role in advancing this critical research. Discover how Transcripta Bio, formerly known as Rarebase, is making significant strides in rare disease research through innovative drug repurposing techniques. Cynthia’s journey b...
