South Central PA Sickle Cell Council, Dwayne Golden
19 episodes
1 month ago
"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities.
Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities.
Through these stories, we aim to shed light on the often-overlooked experiences of those living with Sickle Cell Disease and other health disparities, while also exploring strategies for resilience, self-advocacy, and community building.
Join us on this journey as we seek to inspire hope, promote awareness, and cultivate empathy for those living with chronic illnesses and health disparities.
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"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities.
Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities.
Through these stories, we aim to shed light on the often-overlooked experiences of those living with Sickle Cell Disease and other health disparities, while also exploring strategies for resilience, self-advocacy, and community building.
Join us on this journey as we seek to inspire hope, promote awareness, and cultivate empathy for those living with chronic illnesses and health disparities.
Destiny Van Sciver, the author of "Sickle Cell Superheroes" and a mother of a child with Sickle Cell Disease, shares her story on the SCD Stories podcast. She wants her book to empower people to live a good quality life despite their condition and be the superhero of their own story. After her child had a negative experience at school due to a lack of understanding about the disease, she donated books to the school. Her book is available on Amazon or the Hilton Publishing Co. website, and she hopes to get it into hematology clinics around the country. She emphasizes the importance of being tested for Sickle Cell and allowing children to collaborate in their care to learn how to advocate for themselves. Destiny's parents didn't know they carried the Sickle Cell trait because it wasn't tested for until the 90s.
SCD Stories
"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities.
Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities.
Through these stories, we aim to shed light on the often-overlooked experiences of those living with Sickle Cell Disease and other health disparities, while also exploring strategies for resilience, self-advocacy, and community building.
Join us on this journey as we seek to inspire hope, promote awareness, and cultivate empathy for those living with chronic illnesses and health disparities.
