Sarc Fighter: Living with Sarcoidosis and other rare diseases
John Carlin
158 episodes
1 week ago
The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
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The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
Episode141| A tough patch for me and Royce Roberston rides for all of us.
Sarc Fighter: Living with Sarcoidosis and other rare diseases
38 minutes 53 seconds
4 months ago
Episode141| A tough patch for me and Royce Roberston rides for all of us.
In this episode Royce Robertson joins me to talk about how he's raising money to make it easier for Sarcoidosis patients to travel to and from their appointments. It can be expensive to travel great distances to the right doctor, as he knows first-hand. Royce and I are also part of a panel discussion on exercise and sarcoidosis coming up at the FSR Summit on June 28. I will also share some personal details about a bit of a difficult time I'm experiencing at a personal level. #sarcoidosis #sarcoidosisawareness
Show Notes
FSR Summit on June 28, 29 https://www.stopsarcoidosis.org/sarcoidosis-summit/
Help Royce help you: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc
More on brepocitinib: https://sarcoidosisnews.com/news/brepocitinib-phase-2-trial-doses-first-cutaneous-sarcoidosis-patients/
Methotrexate Study: https://sarcoidosisnews.com/news/methotrexate-effective-though-slower-treating-pulmonary-sarcoidosis/
MORE FROM JOHN:
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
#sarcoidosis #sarcoidosisawareness
Sarc Fighter: Living with Sarcoidosis and other rare diseases
The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
