Sarc Fighter: Living with Sarcoidosis and other rare diseases
John Carlin
158 episodes
1 week ago
The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
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The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
Episode 149 | A look at Sarcoidosis from 20,000 feet and when to fire your doctor
Sarc Fighter: Living with Sarcoidosis and other rare diseases
34 minutes
3 weeks ago
Episode 149 | A look at Sarcoidosis from 20,000 feet and when to fire your doctor
A lot of people find the podcast because they are trying to figure out what's going on in their bodies. They know they have sarcoidosis, but they don't know what it is, how serious it is, or whether it will get worse or maybe - go away. Then there's the question of multi-organ involvement. How common is it and which organs are most often impacted? In this episode of the FSR Sarc Fighter podcast, a look at a new report from Sarcoidosis News that takes a deep dive on many of those questions. Also -- I had a rough visit with my new doctor at my local hospital, and I'm thinking about finding a new doctor. Should I? You decide.
Feeling good on my mountain bike!
Show notes:
Sarcoidosis News Article: https://sarcoidosisnews.com/news/sarcoidosis-often-chronic-disease-affects-multiple-organs
OP-ED by Dr. Ennis James in STAT: https://www.statnews.com/2025/09/24/clinical-trial-patient-fmla-foundation-sarcoidosis-research-job-security/
SHRM: https://www.shrm.org/
FSR News Release: https://www.stopsarcoidosis.org/coalition-to-transform-clinical-trial-engagement-launches-champions-for-change-pto-initiative/
More from FSR: https://www.stopsarcoidosis.org/fsr-receives-confirmation-from-the-department-of-labor-ensuring-patient-access-to-fmla-for-participation-in-clinical-trials/
MORE FROM JOHN:
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
#sarcoidosis #sarcoidosisawareness #fmla #fmlaclarification
Sarc Fighter: Living with Sarcoidosis and other rare diseases
The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
