Sarc Fighter: Living with Sarcoidosis and other rare diseases
John Carlin
158 episodes
1 week ago
The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
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The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
Sarc Fighter: Living with Sarcoidosis and other rare diseases
53 minutes
1 month ago
Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
It's not always easy to participate in a clinical trial. Even if you want to, how do you get the time off from work? Starting in 2025, thanks to the Foundation for Sarcoidosis Research, there is a provision called the FMLA Clarification, which essentially states that you can participate without fear of losing your job. In this episode of the FSR Sarc Fighter Podcast, Dr. Ennis James, a sarcoidosis researcher and physician at the Medical University of South Carolina, and Tricha Shivas, Chief of Staff and Strategy at FSR join me to talk about how difficult life can be for patients. Dr. James shares a real-life story about a woman who fought to stay in a trial after problems arose at work.
SHOW NOTES
OP-ED by Dr. Ennis James in STAT: https://www.statnews.com/2025/09/24/clinical-trial-patient-fmla-foundation-sarcoidosis-research-job-security/
SHRM: https://www.shrm.org/
FSR News Release: https://www.stopsarcoidosis.org/coalition-to-transform-clinical-trial-engagement-launches-champions-for-change-pto-initiative/
More from FSR: https://www.stopsarcoidosis.org/fsr-receives-confirmation-from-the-department-of-labor-ensuring-patient-access-to-fmla-for-participation-in-clinical-trials/
MORE FROM JOHN:
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
#sarcoidosis #sarcoidosisawareness #fmla #fmlaclarification
Sarc Fighter: Living with Sarcoidosis and other rare diseases
The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
