Sarc Fighter: Living with Sarcoidosis and other rare diseases
John Carlin
158 episodes
1 week ago
The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
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The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
Episode 143 | Why Sarc patients MUST exercise and the New FSR Patient Registry explained
Sarc Fighter: Living with Sarcoidosis and other rare diseases
56 minutes 19 seconds
3 months ago
Episode 143 | Why Sarc patients MUST exercise and the New FSR Patient Registry explained
On Episode 143 of the FSR Sarc Fighter Podcast, I have two guests. Taylor Harwood, Senior Research Coordinator for FSR, joins me to explain the new and improved patient registry. Even if you've already registered, there is a small step you need to take to ensure researchers can find and use your valuable information. Also joining me is physical therapist Marion Paetznik, who will tell you why it's so important to get or stay moving if you have sarcoidosis.
Show Notes
FSR Patient Registry https://www.stopsarcoidosis.org/patient-registry/
MORE FROM JOHN:
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
#sarcoidosis #sarcoidosisawareness
Sarc Fighter: Living with Sarcoidosis and other rare diseases
The FSR Sarc Fighter Podcast is about dealing with Sarcoidosis. Whether it’s a patient, healthcare provider, researcher, or a team member from the Foundation for Sarcoidosis Research, the Sarc Fighter podcast provides hope and perspective on this rare disease. Professional journalist and fellow sarc fighter John Carlin hosts the podcast.
