Episode 17 - Hope Through Trials - A Stargardt’s Patient’s Perspective

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Retinal Realities

30 episodes

3 days ago

The Retinal Realities podcast will be a platform for Retina SA to engage in discussions on a wide range of topics including: • Interesting information on retinal degenerative conditions, • Discussions on the latest and greatest assistive devices and apps which help the visually impaired, • Conversations and stories covering science, tech, family, relationships, careers, humour, inspirational triumphs, social change and many more arears of interest

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Episode 17 - Hope Through Trials - A Stargardt’s Patient’s Perspective – with Melanie Nel

Retinal Realities

19 minutes 49 seconds

1 year ago

Episode 17 - Hope Through Trials - A Stargardt’s Patient’s Perspective – with Melanie Nel

Welcome to the latest episode in the Retinal Realities podcast ‘Hope in Trials: A Stargardt’s Patient’s Perspective’. In this episode we explore the remarkable journey of those who dare to participate in groundbreaking medical trials, we delve into a story that embodies courage, uncertainty, and unwavering hope.

Our journey begins when Melani Nel received that life-changing call. The one that would lead her to a clinical trial for Stargardt’s disease right here in South Africa. Emotions swirled within her—disbelief, excitement, hesitation. After all, this was uncharted territory. She had never been part of a clinical trial before, and questions loomed: What impact would it have on her physical and mental well-being?

What if this trial held the key to restoring her vision? Or what if it amounted to nothing more than a hopeful experiment? The possibilities danced in her mind.

At first, a 2-year clinical trial seemed like a very long time, but the months flew by and as she was finishing up with the last tests, she was grateful to have had the opportunity to be part of medical research history. Even though this specific trial didn’t have the outcome she was hoping for, she now knows that there are researchers out there working tirelessly to find a cure for Stargardt’s and several other retinal diseases.

“Medical research isn’t a straight path; it’s a winding journey of discovery, testing, and retesting. And this trial was a beacon—a chance to contribute, to light the way for future generations of young children and teens diagnosed with Stargardt’s.”

Thank you to Roche Products (Pty) Ltd for sponsoring this wonderful series of Retinal Realities podcasts.

Thank you for tuning in. Remember to like and follow us on Facebook @Retinal Realities and Instagram @retinal_realities_sa or to learn more about Stargardt’s visit our website at www.retinasa.org.za.

Podcast Disclaimer: Any information, either audio or visual, contained on this Podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

We are not medical doctors, and you should always contact your physician or other qualified health care professional for any medical advice you need.

The views expressed in this podcast do not reflect the views of Retina South Africa or any of our sponsors