Home
Categories
EXPLORE
True Crime
Comedy
Business
Society & Culture
Health & Fitness
Sports
Technology
About Us
Contact Us
Copyright
© 2024 PodJoint
00:00 / 00:00
Podjoint Logo
US
Sign in

or

Don't have an account?
Sign up
Forgot password
https://is1-ssl.mzstatic.com/image/thumb/Podcasts211/v4/7d/62/e0/7d62e0cb-5fe0-4149-173a-89726f10c0b6/mza_5393777358260502392.jpg/600x600bb.jpg
Rarely Familiar
Rarely Familiar
23 episodes
1 day ago
We are families. We are caregivers. We are parents to children with disabilities and rare medical complexities. We are Rarely Familiar. Three moms get together to learn, to relate, and to laugh (a lot) while we share each other’s unique family experiences of raising the rarest of the rare. Our goal is to unite, educate, inspire, and empower people living a rarely familiar life. We are so glad you’re here!
Show more...
Parenting
Kids & Family
RSS
All content for Rarely Familiar is the property of Rarely Familiar and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
We are families. We are caregivers. We are parents to children with disabilities and rare medical complexities. We are Rarely Familiar. Three moms get together to learn, to relate, and to laugh (a lot) while we share each other’s unique family experiences of raising the rarest of the rare. Our goal is to unite, educate, inspire, and empower people living a rarely familiar life. We are so glad you’re here!
Show more...
Parenting
Kids & Family
https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_episode/41832974/41832974-1725729017919-08508b8d16306.jpg
#8: What is Palliative Care?
Rarely Familiar
43 minutes 47 seconds
1 year ago
#8: What is Palliative Care?

Not clear on what Palliative care is all about? You’re not alone. Get familiar with Dannell, a palliative care family advocate and clinician educator.


In this heartfelt exchange, Rarely Familiar co- hosts Tram, Haley, and Jen, converse with Dannell Shu, a mother and palliative care advocate, who shares her profound knowledge and experience in palliative and hospice care.  Dannell shares her personal journey with palliative and hospice care for her son Levi, who was born with severe brain damage and other medical challenges. The conversation covers the differences between palliative care and hospice care, the team-based approach involved, the importance of advance care directives, and the concept of concurrent care available through the Affordable Care Act. Dannell highlights her passage from a mother navigating her son’s medical complexities and his death; to becoming a palliative care advocate and educator. The episode aims to shed light on these critical topics, breaking down intimidating barriers for parents dealing with similar situations.


Stay Connected with Rarely Familiar:

Instagram⁠⁠

Facebook

⁠Rarely Familiar Website

⁠E-mail: info@rarelyfamiliar.com


Special thanks to:

⁠Eli Brunelle⁠⁠ for Intro and outro Music "New Love" and

Todd Piper Hauswirth at ⁠All-Good⁠ for logo and brand identity


Links and Resources mentioned in this episode

RedBird  Dannell Shu’s website

Want to hear more?  Podcast with Dannell Shu and Palliative Nurse

What you should know about palliative care one pager English & Spanish

https://getpalliativecare.org/handouts-for-patients-and-families/


Rarely Familiar
We are families. We are caregivers. We are parents to children with disabilities and rare medical complexities. We are Rarely Familiar. Three moms get together to learn, to relate, and to laugh (a lot) while we share each other’s unique family experiences of raising the rarest of the rare. Our goal is to unite, educate, inspire, and empower people living a rarely familiar life. We are so glad you’re here!