Rare Disease Day: Fatimah's story

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Rare on Air

EURORDIS

55 episodes

5 days ago

A EURORDIS-Rare Diseases Europe podcast on the experiences, challenges and successes of people living with rare diseases. Julien Poulain, Communications Manager at EURORDIS, meets with people who share their unique experiences of living with a rare disease, those who advocate for them, and experts on rare disease policy. Email the EURORDIS Rare on Air team at: rareonair@eurordis.org.

Health & Fitness

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Health & Fitness

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Rare Disease Day: Fatimah's story

Rare on Air

4 minutes 36 seconds

10 months ago

Rare Disease Day: Fatimah's story

In this episode of our bonus series marking Rare Disease Day, we share Fatimah’s story, a journey marked by misdiagnosis, various treatments, and the mystery of Muscular Dystrophy.

Despite her daily challenges, Fatimah remains positive and deeply grateful for her support system. Her strength shines through as she hopes for a brighter future for everyone living with Muscular Dystrophy.

Visit ⁠rarediseaseday.org⁠ to share your story or get involved. Rare Disease Day is on 28 February 2025.