ERNs on Air: JARDIN - The Joint Action integrating ERNs into national health systems

https://is1-ssl.mzstatic.com/image/thumb/Podcasts112/v4/96/d9/d0/96d9d045-4865-978f-7779-cb3ba34e0a39/mza_16932794593929269103.jpg/600x600bb.jpg

Rare on Air

EURORDIS

54 episodes

1 week ago

A EURORDIS-Rare Diseases Europe podcast on the experiences, challenges and successes of people living with rare diseases. Julien Poulain, Communications Manager at EURORDIS, meets with people who share their unique experiences of living with a rare disease, those who advocate for them, and experts on rare disease policy. Email the EURORDIS Rare on Air team at: rareonair@eurordis.org.

Health & Fitness

RSS

All content for Rare on Air is the property of EURORDIS and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Health & Fitness

https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_episode/33541421/33541421-1733160472267-2e68c54124777.jpg

ERNs on Air: JARDIN - The Joint Action integrating ERNs into national health systems

Rare on Air

19 minutes 11 seconds

11 months ago

ERNs on Air: JARDIN - The Joint Action integrating ERNs into national health systems

In the final ERNs on Air episode of 2024, Ines Hernando (ERN and Healthcare Director) is joined by Dorica Dan (President of the Romanian Rare Disease National Alliance and patient lead in ERN ITHACA) and Cesar Hernandez Garcia (Director General at the Spanish Ministry of Health) to discuss the JARDIN project, which aims to integrate European Reference Networks (ERNs) into national healthcare systems across Europe. Listen now for an exploration of the value of ERNs in enhancing national-level care, as well as the challenges and opportunities of this Joint Action.