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Rare Mind Talks
Andre Correia
11 episodes
1 month ago
"Rare Mind Talks" podcast explores how Education, AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, it aims to simplify complex topics, inspire research, and connect experts to improve lives. Learn more at https://www.theraremind.com or Follow us on instagram @theraremindtalks
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Technology
Science,
Life Sciences
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All content for Rare Mind Talks is the property of Andre Correia and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
"Rare Mind Talks" podcast explores how Education, AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, it aims to simplify complex topics, inspire research, and connect experts to improve lives. Learn more at https://www.theraremind.com or Follow us on instagram @theraremindtalks
Show more...
Technology
Science,
Life Sciences
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11: How to Break Data Silos in Rare Diseases (with Francisco Aguiar)
Rare Mind Talks
28 minutes 21 seconds
1 month ago
11: How to Break Data Silos in Rare Diseases (with Francisco Aguiar)
In How to Break Data Silos in Rare Diseases, Francisco Aguiar from BI4ALL joins me to explore how data and AI can truly reshape the rare disease ecosystem. He explains why data integration, interoperability, and literacy are essential to speed up diagnosis and empower patients. From real-world evidence to patient registries, Francisco highlights how data helps healthcare professionals, researchers, and Pharma companies work together for more personalised care. We discuss Europe's journey toward a connected health data space and the crucial role of patient advocates in driving this change. Finally, we reflect on how sharing data ethically and collaboratively can give patients a stronger voice, enabling faster insights, better treatments, and more hope for the rare disease community. Rare Mind Talks podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives. Learn more at https://www.theraremind.com or Follow us on Instagram @theraremindtalks 🎥 Prefer watching? See the video here.
Rare Mind Talks
"Rare Mind Talks" podcast explores how Education, AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, it aims to simplify complex topics, inspire research, and connect experts to improve lives. Learn more at https://www.theraremind.com or Follow us on instagram @theraremindtalks