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Rare Care Chronicles
TANGO2 Research Foundation
9 episodes
1 week ago
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.
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Non-Profit
Business
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All content for Rare Care Chronicles is the property of TANGO2 Research Foundation and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.
Show more...
Non-Profit
Business
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Uncharted Youth: Caregiving in the Teen Years
Rare Care Chronicles
15 minutes 24 seconds
1 year ago
Uncharted Youth: Caregiving in the Teen Years

John was diagnosed with TANGO2 deficiency disorder when he was a teen. His dad, Cesar joins us to answer questions and share with us what it's like to be a caregiver for teen.

About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 deficiency disorder.

To learn more, visit ⁠⁠⁠www.tango2research.org⁠⁠⁠. Find us on Facebook: ⁠⁠  / tango2research  ⁠⁠ Find us on X: ⁠⁠  / tango2research  ⁠⁠ Find us on Instagram: ⁠⁠  / tango2researchfoundation  ⁠⁠ Find us on LinkedIn: ⁠⁠  / tango2-research-foundation  

Rare Care Chronicles
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.