Rare Care: Reducing Distress & Embracing Well-Being

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Rare Care Chronicles

TANGO2 Research Foundation

9 episodes

6 days ago

Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.

Non-Profit

Business

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All content for Rare Care Chronicles is the property of TANGO2 Research Foundation and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.

Non-Profit

Business

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Rare Care: Reducing Distress & Embracing Well-Being

Rare Care Chronicles

40 minutes 44 seconds

1 year ago

Rare Care: Reducing Distress & Embracing Well-Being

Amanda Hull is from Suffolk in England. She and husband, Daniel, have three boys; Joe, Sebby and Walter. Sebby is a 13-year-old diagnosed with TANGO2 Deficiency Disorder. Amanda has worked as an Educational Psychologist for the past 18 years, and discusses strategies for increased well-being for rare disease caregivers.

About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 deficiency disorder.

To learn more, visit ⁠www.tango2research.org⁠. Find us on Facebook: / tango2research Find us on X: / tango2research Find us on Instagram: / tango2researchfoundation Find us on LinkedIn: / tango2-research-foundation