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Rare Care Chronicles
TANGO2 Research Foundation
9 episodes
1 week ago
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.
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Non-Profit
Business
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All content for Rare Care Chronicles is the property of TANGO2 Research Foundation and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.
Show more...
Non-Profit
Business
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Nurturing Gratitude: A Journaling Guide for Caregivers
Rare Care Chronicles
29 minutes 20 seconds
1 year ago
Nurturing Gratitude: A Journaling Guide for Caregivers

Amanda Hull is from Suffolk in England. She and husband, Daniel, have three boys; Joe, Sebby and Walter. Sebby is a 13-year-old diagnosed with TANGO2 Deficiency Disorder. Amanda has worked as an Educational Psychologist for the past 18 years, and discusses how to journal as an outlet for caregivers.


About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 deficiency disorder.

To learn more, visit ⁠⁠www.tango2research.org⁠⁠. Find us on Facebook: ⁠  / tango2research  ⁠ Find us on X: ⁠  / tango2research  ⁠ Find us on Instagram: ⁠  / tango2researchfoundation  ⁠ Find us on LinkedIn: ⁠  / tango2-research-foundation  

Rare Care Chronicles
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.