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Rare Care Chronicles
TANGO2 Research Foundation
9 episodes
1 week ago
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.
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Non-Profit
Business
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All content for Rare Care Chronicles is the property of TANGO2 Research Foundation and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.
Show more...
Non-Profit
Business
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A Doctor's Discovery Ignites a Child's Legacy
Rare Care Chronicles
26 minutes 12 seconds
1 year ago
A Doctor's Discovery Ignites a Child's Legacy

Ann Geffen, Executive Director of the TANGO2 Research Foundation interviews Marcie Lopez (mom to our TANGO2 angel Sammy) and Dr. Seema Lalani. Marcie and Dr. Lalani share their experience on how Dr. Lalani became the first person to recognize TANGO2 deficiency disorder and why she decided to get involved with the Foundation.

About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 deficiency disorder.

To learn more, visit www.tango2research.org. Find us on Facebook:   / tango2research   Find us on X:   / tango2research   Find us on Instagram:   / tango2researchfoundation   Find us on LinkedIn:   / tango2-research-foundation  

Rare Care Chronicles
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.