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Rare Aware
Alanna Peck - Engagement at Rare Disorders NZ
1 episodes
2 weeks ago
In this episode of Rare Aware, we explore the power of advocacy — and just how far we’ve come in New Zealand. We’re joined by James McGoram, Chair of the Board for Rare Disorders NZ, who shares his personal journey from receiving a rare diagnosis to becoming a passionate advocate for change. James opens up about the challenges of navigating the health system, what inspired him to get involved with RDNZ, and the progress he’s seen over his six years as Chair. We’ll also unpack what advocacy re...
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Health & Fitness
Education,
Society & Culture
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In this episode of Rare Aware, we explore the power of advocacy — and just how far we’ve come in New Zealand. We’re joined by James McGoram, Chair of the Board for Rare Disorders NZ, who shares his personal journey from receiving a rare diagnosis to becoming a passionate advocate for change. James opens up about the challenges of navigating the health system, what inspired him to get involved with RDNZ, and the progress he’s seen over his six years as Chair. We’ll also unpack what advocacy re...
Show more...
Health & Fitness
Education,
Society & Culture
https://is1-ssl.mzstatic.com/image/thumb/Podcasts211/v4/23/90/d6/2390d697-1226-8ee6-bfc8-2503267fb350/mza_14073834333548026779.jpg/600x600bb.jpg
The Power of Advocacy- James McGoram
Rare Aware
55 minutes
3 weeks ago
The Power of Advocacy- James McGoram
In this episode of Rare Aware, we explore the power of advocacy — and just how far we’ve come in New Zealand. We’re joined by James McGoram, Chair of the Board for Rare Disorders NZ, who shares his personal journey from receiving a rare diagnosis to becoming a passionate advocate for change. James opens up about the challenges of navigating the health system, what inspired him to get involved with RDNZ, and the progress he’s seen over his six years as Chair. We’ll also unpack what advocacy re...
Rare Aware
In this episode of Rare Aware, we explore the power of advocacy — and just how far we’ve come in New Zealand. We’re joined by James McGoram, Chair of the Board for Rare Disorders NZ, who shares his personal journey from receiving a rare diagnosis to becoming a passionate advocate for change. James opens up about the challenges of navigating the health system, what inspired him to get involved with RDNZ, and the progress he’s seen over his six years as Chair. We’ll also unpack what advocacy re...