Join host Lindsey Smith and other Osmosis team members for a global conversation about improving health and healthcare with prominent figures in education and healthcare innovation such as Chelsea Clinton, Mark Cuban, Dr. Ashish Jha, Dr. Eric Topol, Dr. Vivian Lee and Sal Khan, as well as senior leaders at organizations such as the CDC, National Institutes of Health, Johns Hopkins University, WHO, Harvard University, NYU Langone and many others.
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Join host Lindsey Smith and other Osmosis team members for a global conversation about improving health and healthcare with prominent figures in education and healthcare innovation such as Chelsea Clinton, Mark Cuban, Dr. Ashish Jha, Dr. Eric Topol, Dr. Vivian Lee and Sal Khan, as well as senior leaders at organizations such as the CDC, National Institutes of Health, Johns Hopkins University, WHO, Harvard University, NYU Langone and many others.
Rare Disease Patients as Changemakers in Medicine: Rebecca Salky, Senior Clinical Research Coordinator for the Neuroimmunology Clinic & Research Lab at Massachusetts General Hospital
Raise the Line
28 minutes 11 seconds
2 months ago
Rare Disease Patients as Changemakers in Medicine: Rebecca Salky, Senior Clinical Research Coordinator for the Neuroimmunology Clinic & Research Lab at Massachusetts General Hospital
You’re in for a dose of inspiration in this Year of the Zebra episode as we introduce you to Rebecca Salky, RN, a rare disease patient who was a leading force in establishing the diagnosis for her own condition, who played a key role in launching the first phase three clinical trials for it, and who is now coordinating research into the disease and related disorders at one of the nation's top hospitals. Join host Lindsey Smith as Rebecca describes her long and challenging journey with MOGAD, the importance of finding a community, and the three things she thinks are missing in the care of rare disease patients.
Raise the Line
Join host Lindsey Smith and other Osmosis team members for a global conversation about improving health and healthcare with prominent figures in education and healthcare innovation such as Chelsea Clinton, Mark Cuban, Dr. Ashish Jha, Dr. Eric Topol, Dr. Vivian Lee and Sal Khan, as well as senior leaders at organizations such as the CDC, National Institutes of Health, Johns Hopkins University, WHO, Harvard University, NYU Langone and many others.
