In this episode Andy Kuhlmann (he/they) and MP Vare (they/them) try out some different ways to describe lipedema. What kind of disease is it? What’s it like when your body changes and hurts in ways that no one around you can help you understand? MP and Andy share definitions that have helped them, talk about their pathways to diagnosis, and explore some of the narratives they’ve each wrestled with along the way.
Show Notes:
Episode transcript coming soon.
Info about the Types and Stages of Lipedema from the Cleveland Clinic
The Standard of care for lipedema in the United States also describes the stages.
Making a Definitive Diagnosis of Lipedema by John R. Bartholomew, MD
The pain scale MP’s physical therapist shared with them is the Defense and Veterans Pain Rating Scale.
A little love from Kermit the Frog
Understanding characteristics of white supremacy culture
A grant from the Awesome Foundation's disability chapter provided start up funds for this podcast.
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