Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
All content for PWS United is the property of PWSA | USA and is served directly from their servers
with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
24 Hour Crisis Line: 941-312-0400
Gala
Journey of Hope Gala Recap: Celebrating 50 Years of PWSA | USA - Prader-Willi Syndrome Association | USA
Tribute Video: Celebrating 50 Years of PWSA | USA!
PWSA | USA's Journey of Hope Gala Photo Gallery
PWSA Memory
1987_Vol-XIII-N4-Jul-Aug-1987.pdf
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events | Fundraisers
2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
Calling Missouri PWS Families! - Prader-Willi Syndrome Association | USA
Calling Indiana PWS Families! - Prader-Willi Syndrome Association | USA
Understanding P&T Committees and DUR Boards - Prader-Willi Syndrome Association | USA
Family Support
Intervening with a Bully, One Family’s Experience - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Stretch Marks with Estradiol - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
TREND Community - Prader-Willi Syndrome Association | USA
2025-Whats-TRENDing-Birth-Stories-and-PWS.pdf
Acadia Shares Results of Phase 3 Carbetocin Trial: Primary Endpoint Not Met - Prader-Willi Syndrome Association | USA
Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA
www.heroforpws.com
HERO Informational Webinar Registration: Webinar Registration - Zoom
HERO Clinical Trial for ARD-101 Now Enrolling Open-Label Extension (OLE) - Prader-Willi Syndrome Association | USA
Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA
Request for Prader-Willi Syndrome Research Grant Applications
Announcements/Resource Spotlight
Therapeutic-Interventions-2011.pdf
Intro Music: https://www.bensound.com/ License certificate #2242442
PWS United
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
