Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns

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PWS United

PWSA | USA

65 episodes

1 week ago

Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.

All content for PWS United is the property of PWSA | USA and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Non-Profit

Education,

Business

Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns

PWS United

38 minutes

1 month ago

Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Gala Live Auction PWSA | USA's 50th Anniversary: Journey of Hope Gala AUCTION 50th-Gala-How-to-Bid-on-the-Silent-Auction.pdf PWSA Memory 1982_Vol-VIII-N5-Sept-Oct-1982.pdf Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA Events PWSA | USA's 50th Anniversary: Journey of Hope Gala - Campaign Fundraisers 2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign Answers for Audrey - Campaign Prader-Silly: A Night of Rare Laughs - Prader-Willi Syndrome Association | USA PWSA Fundraising Pages - Campaign Spotlight on Hope Rising Star in the PWS Community and Beyond - Prader-Willi Syndrome Association | USA Share Your Story - Prader-Willi Syndrome Association | USA Advocacy 2024-Rare-Roadmap_Rare-Research.pdf Global PWS Registry - Prader-Willi Syndrome Association | USA TREND Community - Prader-Willi Syndrome Association | USA Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA Family Support Adults with PWS: Living a Happy, Healthy Life - Prader-Willi Syndrome Association | USA C15 Foundation – Where Unlimited Potential Can Grow and Thrive Affecting Sleep with PWS - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Parent perceptions of genetic diagnosis in the inpatient setting in the neonatal intensive care unit (NICU), pediatric intensive care unit (PICU), and cardiac care unit (CCU) Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA Seattle, WashingtonSeattle Children's HospitalContact: Isabella Niu, MD / Stephanie PurdyPhone: (206) 987-2640Email: stephanie.purdy@seattlechildrens.org www.heroforpws.com Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA Request for Prader-Willi Syndrome Research Grant Applications Announcements/Resource Spotlight NICU-Booklet-Rebranded-2022.pdf Intro Music: https://www.bensound.com/ License certificate #2242442