Patient Research Partner Experience Sharing with Karen

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PsA HQ Podcasts

Mel

35 episodes

2 days ago

Welcome to PsA HQ! I'm your host Mel, and I'm passionate about fostering peer support within the Psoriatic Arthritis, Psoriasis and broader autoimmune and inflammatory conditions community. This channel is a space for sharing experiences and I believe in the power of open, inclusive dialogue and the transformative impact of knowledge sharing. Join me in bridging the communication gap and creating an inclusive and impactful research landscape. Remember, all opinions are our own or those of our guests. Always seek proper medical advice. Thank you for listening - let's learn and grow together!

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Personal Journals

Society & Culture

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Patient Research Partner Experience Sharing with Karen

PsA HQ Podcasts

23 minutes 27 seconds

1 year ago

Patient Research Partner Experience Sharing with Karen

Welcome back to PsA HQ! I’m Mel Brooke and I am on a mission to break down the barriers that can put people off getting involved in research! In this episode I talk to Karen, a Patient Research Partner who has volunteered to share her experience of working with research teams with us to help find ways to improve and evolve collaborations.

As mentioned at the end of the episode, I would really value it if you would take part in my survey to understand what experience and learning resources you have or would like to see available for PRPs. The link is ⁠PsA HQ PRP SURVEY⁠

If you would like to share your experience of research involvement from a patient or researcher perspective, or share a research opportunity or news please get in touch - send an email me at ⁠psazzgroup@gmail.com⁠

My website and contacts can be found via ⁠⁠⁠⁠one of my links here ⁠⁠⁠⁠ and I would love it if you follow me on your listening platform for news of more episodes!

Music by ⁠⁠⁠⁠Yevhen Onoychenko⁠⁠⁠⁠ from ⁠⁠⁠⁠Pixabay⁠⁠⁠