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PsA HQ Podcasts
Mel
35 episodes
6 days ago
Welcome to PsA HQ! I'm your host Mel, and I'm passionate about fostering peer support within the Psoriatic Arthritis, Psoriasis and broader autoimmune and inflammatory conditions community. This channel is a space for sharing experiences and I believe in the power of open, inclusive dialogue and the transformative impact of knowledge sharing. Join me in bridging the communication gap and creating an inclusive and impactful research landscape. Remember, all opinions are our own or those of our guests. Always seek proper medical advice. Thank you for listening - let's learn and grow together!
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Personal Journals
Society & Culture
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All content for PsA HQ Podcasts is the property of Mel and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to PsA HQ! I'm your host Mel, and I'm passionate about fostering peer support within the Psoriatic Arthritis, Psoriasis and broader autoimmune and inflammatory conditions community. This channel is a space for sharing experiences and I believe in the power of open, inclusive dialogue and the transformative impact of knowledge sharing. Join me in bridging the communication gap and creating an inclusive and impactful research landscape. Remember, all opinions are our own or those of our guests. Always seek proper medical advice. Thank you for listening - let's learn and grow together!
Show more...
Personal Journals
Society & Culture
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JLA PsP: Patient perspective on being part of the project
PsA HQ Podcasts
28 minutes 20 seconds
3 years ago
JLA PsP: Patient perspective on being part of the project

Hello and welcome to another special podcast episode in this series about the ‘The James Lind Alliance Priority Setting Partnership for Psoriatic Arthritis’ - a project funded by the British Psoriatic Arthritis Consortium (BritPACT) and was a collaboration with the British Society of Rheumatology (BSR), Psoriasis Association and the Psoriasis and Psoriatic Arthritis Alliance (PAPAA).  In this episode I speak with Russ Cowper, a patient partner on the steering committee for the PsP project.  Russ talks to me about his own experiences with psoriatic arthritis and how and why he gets involved in research engagement. 


Here's those links I mentioned in the series:

Top 10 Priorities https://www.jla.nihr.ac.uk/priority-setting-partnerships/psoriatic-arthritis/psoriatic-arthritis-top-10-priorities.htm

James Lind Alliance - https://www.jla.nihr.ac.uk

BritPACT  https://www.britpact.org/Impact#PSP

British Society for Rheumatology (BSR) https://www.rheumatology.org.uk

Psoriasis Association https://www.psoriasis-association.org.uk

Psoriasis and Psoriatic Arthritis Alliance (PAPAA) https://www.papaa.org

PsA HQ Linktree  https://linktr.ee/PsA_HQ

Please subscribe, rate and bookmark this channel! There are lots of ways to get in touch - here's my link tree or you can send an email to:  psazzgroup@gmail.com

Attribution:  Music by lemonmusicstudio from Pixabay

PsA HQ Podcasts
Welcome to PsA HQ! I'm your host Mel, and I'm passionate about fostering peer support within the Psoriatic Arthritis, Psoriasis and broader autoimmune and inflammatory conditions community. This channel is a space for sharing experiences and I believe in the power of open, inclusive dialogue and the transformative impact of knowledge sharing. Join me in bridging the communication gap and creating an inclusive and impactful research landscape. Remember, all opinions are our own or those of our guests. Always seek proper medical advice. Thank you for listening - let's learn and grow together!