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Project CASK Podcast
Project CASK
21 episodes
1 week ago
The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
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All content for Project CASK Podcast is the property of Project CASK and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
Show more...
Non-Profit
Business
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Ep 6: Creating Independence and Happiness with Christine Phillips
Project CASK Podcast
55 minutes 59 seconds
2 years ago
Ep 6: Creating Independence and Happiness with Christine Phillips

Today our special guest parent is Christine Phillips, mama to Emmy and Andy… 

Being such a small community, it’s probably the case that our children are all unique. But in that sea of originality, little Emmy is a truly rare gem, having been born with both spina bifida and a cask gene mutation.

In this episode, we cover quite a few topics. From dual diagnosis, to recognizing unusual seizure presentation, g-tubes, keto and a blended diet, ableism, and creating an environment rich for our children's unique needs! We are incredibly thankful to have Christine share with all of us; she is a true warrior mama!


You can follow Christine and Emmy's story on Instagram at @emeliasstory


Project CASK Podcast
The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.