The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
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The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
This episode is dedicated to all the beloved ones we have lost in our cask community.
Their names will forever be in our hearts, and on our minds. Spoken in our homes, our community, and in our advocacy.
May the peace which comes from the memories of love, comfort their families and all those who loved them on the road ahead.
Mental Health in Rare Disease - Global Genes
Rachel Alves, mama to 8 year old Audrey shares with us about her journey to diagnosis, and her exploration to the betterment of mental health.
Links and resources mentioned:
Global Genes Advocacy Summit
Kara Ryska - coaching website
The Special Needs Mom Podcast - Kara Ryska, featuring Rachel Alves
Jessica Patay - We Are Brave Together
Effie Parks - Once Upon A Gene - episode 184
Connect with Rachel:
Blog
@alvesmomkickingcask
Rach.m.alves@gmail.com
Project CASK Podcast
The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
