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Project CASK Podcast
Project CASK
21 episodes
1 day ago
The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
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All content for Project CASK Podcast is the property of Project CASK and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
Show more...
Non-Profit
Business
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Ep 2: Worry About Tomorrow, Tomorrow - with Emily Stiglitz
Project CASK Podcast
37 minutes
2 years ago
Ep 2: Worry About Tomorrow, Tomorrow - with Emily Stiglitz

Join us as we chat with Emily Stiglitz, mama to two year old Sophie! We talk about the ups and downs of a new diagnosis, and learn a little more about her journey.


Enjoy this link to the Fralin Biotechnical Research Institute's beautiful video of the Steglitz's experience of intensive therapy:

https://youtu.be/j6OyB1v85OM


Take aways from Emily:

+ Don’t let the diagnosis define your child. They will shock you with how much they’re capable of doing.

+ Advocate!!! No one loves your child more than you and they aren’t always able to speak up or make decisions for themselves.

+ Worry about tomorrow, tomorrow.

+ Be prepared to experience a love greater than anything in this world!

Project CASK Podcast
The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.