53 | Businesses started because of Rett, What is a Rett clinic w/ Tristen Dinkel, and more!

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pRETTy happy. | Hope and Rett syndrome

Sarah and Sam

65 episodes

5 days ago

Bringing families and friends together from the Rett syndrome community to discuss life, research, and just have fun. New episodes are released every other Monday morning ... or when life let's us have a break. lol

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All content for pRETTy happy. | Hope and Rett syndrome is the property of Sarah and Sam and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

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53 | Businesses started because of Rett, What is a Rett clinic w/ Tristen Dinkel, and more!

pRETTy happy. | Hope and Rett syndrome

1 hour 8 minutes 45 seconds

2 years ago

53 | Businesses started because of Rett, What is a Rett clinic w/ Tristen Dinkel, and more!

On this weeks episode we chat about three businesses that were started because of individuals with Rett syndrome. The first is Eye Designs by Emily. Emily, who has Rett, shares her talent to create works of art using an eye gaze device. She donates all of her proceeds to Rett syndrome research. You can find her on her website, Instagram and Facebook. The second business that we looked at is Blüm and Bee. They had their soft opening at the end of 2022. Blüm and Bee's online store only employs those with disabilities and even provide a training program to help those individuals succeed. Blüm and Bee was started by Anna Cate's mother. Anna Cate has Rett and when she finished school they knew she would need something fulfilling and worthwhile to fill her time and Blüm and Bee was born. You can support them by following them on Instagram. The third business that we talked about is West Coast Door Mats. Ebony (who has Rett) and her mom Allie create custom designed door mats. They work together to design and paint every door mat by hand. While they are located in Australia, they ship world wide. Find them on Facebook and Instagram.

If you have ever wondered how the Rett Clinic at Children's Hospital Colorado functions, this is the episode for you! Tristen Dinkel an RN and coordinator extraordinaire for the clinic. We chat with Tristen about everything from how she got involved with the clinic, to the function of a Rett clinic and how you can prepare for your visit. You can find more information about the Rett Clinic at Children's Hospital Colorado at their website and you can find more information about other clinics at on IRSF's website.

If you are a newly diagnosed family, you can find loads of information regarding Rett Syndrome on our website (linked below), including links to various foundations and support groups worldwide. And, of course, feel free to reach out to us; we love connecting with new families!

Subscribe today so that you never miss an episode. And we'll see you next time!

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