On this week's episode we talk about Acadia's announcement that Trofinetide, the first ever potential drug for Rett treatment, was accepted for filing and review by the FDA. We breakdown the three things that you need to know from that press release. You can find that announcement here.
We continue our conversation with speech language pathologist, Gerna Scholte about communication and inclusion. Gerna share with us ways to be better communicators and well as how to help those around us communicate with our loved ones. If you'd like to get in contact with Gerna you can email her at be.response.able@gmail.com or you can find her on Youtube, Facebook, Instagram and Tik Tok.
If you are a newly diagnosed family, you can find loads of information regarding Rett Syndrome on our website (linked below), including links to various foundations and support groups worldwide. And, of course, feel free to reach out to us; we love connecting with new families!
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