10 Years as a Cancer Caregiver: The Hard Truths Nobody Tells You

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Patient from Hell

Manta Cares

103 episodes

6 days ago

Are you a cancer patient? Caregiver? Survivor? Advocate? Friend? Then you've come to the right place! The Patient from Hell is a bi-weekly podcast hosted by cancer survivor, founder of Manta Cares, and self-described "patient from hell", Samira Daswani. The podcast features guests who are making the cancer experience a little easier. Each episode will educate, empower, inspire and most importantly, show you that you are not alone in your experience. Listen on Apple Podcasts, Spotify, YouTube, or wherever you listen to (or watch!) podcasts.

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Medicine

Health & Fitness

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10 Years as a Cancer Caregiver: The Hard Truths Nobody Tells You

Patient from Hell

38 minutes 13 seconds

1 month ago

10 Years as a Cancer Caregiver: The Hard Truths Nobody Tells You

In this episode of The Patient From Hell, host Samira engages with Charlotte Bayala, a caregiver who shares her journey through the challenges of supporting a loved one with cancer. The conversation explores the emotional and practical aspects of caregiving, the lack of agency often felt by caregivers, and the importance of self-care amidst the demands of the role. Charlotte reflects on her experiences, the lessons learned, and the strategies she developed to navigate the complexities of caregiving while maintaining her own well-being.

Chapter Codes

00:00 Introduction to Caregiving and Its Impact

05:37 The Shift: Diagnosis and Role of Caregiver

10:30 Agency in Caregiving: The Unasked Role

14:15 Survival Mode: Caregiver's Protective Instincts

18:19 The Caregiver's Learning Curve

25:44 Trial and Error: Navigating the Caregiving Journey

32:24 Rapid Fire: Insights and Reflections

Takeaways

Caregiving often comes without a clear role definition.

The transition to caregiver can be overwhelming and unexpected.

Mindfulness practices from yoga can help caregivers stay present.Caregivers often operate in survival mode, balancing protection and care.

Agency in caregiving is often unacknowledged, leading to stress.

The caregiver's role is strategic, requiring foresight and planning.

Caregivers need to prioritize their own health and well-being.

Trial and error is a significant part of the caregiving journey.

Communication with healthcare providers is crucial for effective care.

Caregivers should be recognized as integral members of the care team.

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Disclaimer:

All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.