How does an advocacy organization with a historic legacy transform and lead on the most pressing issues facing its constituents today? Host Eric Racine and co-host Robin Johnson sit down with Cindy Rahman, President & CEO, and Erin Jones, Senior Director Legislative & Strategic Counsel, at March of Dimes. From its historic role in eradicating polio to its modern fight for the health of all moms and babies, March of Dimes evolves by mobilizing data, storytelling, and collaboratio...
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How does an advocacy organization with a historic legacy transform and lead on the most pressing issues facing its constituents today? Host Eric Racine and co-host Robin Johnson sit down with Cindy Rahman, President & CEO, and Erin Jones, Senior Director Legislative & Strategic Counsel, at March of Dimes. From its historic role in eradicating polio to its modern fight for the health of all moms and babies, March of Dimes evolves by mobilizing data, storytelling, and collaboratio...
Building Awareness, Driving Change: Inside APFED’s Strategy for Rare Disease Advocacy
Patient Advocacy Voices
37 minutes
6 months ago
Building Awareness, Driving Change: Inside APFED’s Strategy for Rare Disease Advocacy
How do you drive awareness for a rare disease with a name that’s difficult to even pronounce and a wide range of symptoms that mimic other conditions? In this episode, host Eric Racine and co-host Preeya George-Guiser sit down with Mary Jo Strobel, Executive Director of the American Partnership for Eosinophilic Disorders (APFED), about the organization’s strategic approach to rare disease advocacy. Mary Jo shares how APFED blends creativity, strategy, and a patient-centered approach to raise ...
Patient Advocacy Voices
How does an advocacy organization with a historic legacy transform and lead on the most pressing issues facing its constituents today? Host Eric Racine and co-host Robin Johnson sit down with Cindy Rahman, President & CEO, and Erin Jones, Senior Director Legislative & Strategic Counsel, at March of Dimes. From its historic role in eradicating polio to its modern fight for the health of all moms and babies, March of Dimes evolves by mobilizing data, storytelling, and collaboratio...
