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PANS/PANDAS STORIES
Jo Joyner and Lucy McDonald
16 episodes
5 days ago
Welcome to The PANS/PANDAS Stories. In the first series, actor and charity campaigner Jo Joyner, and child counsellor and journalist, Lucy McDonald, meet children and families affected by this neuropsychiatric disorder. They also interview experts at the cutting edge of treatment. Awareness is growing, and the pair hope this podcast will offer hope and support to sufferers as they navigate an often long and complicated road to recovery. Disclaimer - Episodes can contain upsetting themes. It does not replace medical advice.
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Mental Health
Health & Fitness
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All content for PANS/PANDAS STORIES is the property of Jo Joyner and Lucy McDonald and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to The PANS/PANDAS Stories. In the first series, actor and charity campaigner Jo Joyner, and child counsellor and journalist, Lucy McDonald, meet children and families affected by this neuropsychiatric disorder. They also interview experts at the cutting edge of treatment. Awareness is growing, and the pair hope this podcast will offer hope and support to sufferers as they navigate an often long and complicated road to recovery. Disclaimer - Episodes can contain upsetting themes. It does not replace medical advice.
Show more...
Mental Health
Health & Fitness
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Immunologist Dr Denis Bouboulis talks about long-term treatment and the link with Lyme
PANS/PANDAS STORIES
47 minutes 25 seconds
11 months ago
Immunologist Dr Denis Bouboulis talks about long-term treatment and the link with Lyme

Dr Denis Bouboulis, an allergist and immunologist from the US, has been diagnosing and treating PANS PANDAS for nearly 20 years. He talks about the "wild card" of Covid and how Long Covid could be linked to underlying vector-borne infections, such as Lyme disease.

In the States, there is more awareness and testing around Lyme and co than in the UK, and it certainly made me think about what could be missing from our children's treatment - especially those who do not seem to get significantly better or frequently relapse.

He also discusses how short-term antibiotics to treat PANS/PANDAS is a "false narrative" and how long-term treatment is key for recovery.

Although based in the States, he works via telemedicine across the world.

Here he is on Linkedin https://www.linkedin.com/in/dr-denis-bouboulis/recent-activity/all/


PANS/PANDAS STORIES
Welcome to The PANS/PANDAS Stories. In the first series, actor and charity campaigner Jo Joyner, and child counsellor and journalist, Lucy McDonald, meet children and families affected by this neuropsychiatric disorder. They also interview experts at the cutting edge of treatment. Awareness is growing, and the pair hope this podcast will offer hope and support to sufferers as they navigate an often long and complicated road to recovery. Disclaimer - Episodes can contain upsetting themes. It does not replace medical advice.