This week, Jo Joyner talks to Gareth Costello about his daughter Rose who went from a confident, popular girl, who loved school, to a shadow of her former self almost overnight. Gareth describes this change, as a "light switch" moment.
The trigger? A sore throat. He talks about rushing home from work to a changed child, the relief of being listened to by a GP, and how he is giving something back to the PANS/PANDAS community by fundraising.
Listen to how 12-year-old Rose is doing now, in Episode 3 of PANS/PANDAS Stories....
*****Coming up over the next few weeks - interviews with paediatrician, Dr Tim Ubhi, nutritionist and naturopath Lucinda Miller and Jessica's mother, Helen Huitson.*****
******We are planning Series Two of PANS/PANDAS Stories. Thanks to everyone who has responded to the poll. From your feedback, we know you want more chats with sufferers of PANS/PANDAS themselves as well as with experts. Please contact us, if you would like to share your story (DM on our Insta page please!)
*****We've also been asked for a Q&A session with experts and are working out the best way to do this. So again watch this space. ******
*****There is so much we want to do - including interviews with adults, as we know this isn't just a paediatric illness. Interviewees so far have had PANDAS, but IVs with PANS sufferers are also in the pipeline.
***** Thanks so much for your support. We can't do this without you, so please rate and follow us, to help spread the word, provide support to parents and sufferers, and raise awareness.*****
Lucy and Jo xxxx