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OPENPediatrics
OPENPediatrics
500 episodes
7 hours ago
In this special Complex Care Journal Club podcast episode, host Dr. Kilby Mann interviews presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 79th Annual Meeting, October 15-18, 2025, in New Orleans, Louisiana. Speakers describe their study findings and implications for practice. Dr. Francisco Valencia also discusses the role of the Complex Care Committee and the profound impact of mentorship in the field of complex care. SPEAKERS Laura Brunton, PT, PhD, Associate Professor, School of Physical Therapy, Western University, London, Ontario, Canada Caitlin Cassidy, MD, Associate Professor, Department of Physical Medicine and the Department of Rehabilitation and Pediatrics, Western University, London, Ontario, Canada Susan Gibb, MBBS, FRACP, Medical Lead, Complex Care Hub, Royal Children’s Hospital, Melbourne, Australia Francisco Valencia, MD, Pediatric Orthopedic Surgeon, Children's Clinics For Rehabilitative Services, Tucson, Arizona Simran Prakash, BA, Medical Student, University of Miami Miller School of Medicine Karen Pratt, BA, MSc, PhD Candidate, Western University School of Health Sciences, London, Ontario, Canada Claire Wallace, PhD, Pediatric Psychologist, Ranken Jordan Pediatric Bridge Hospital, Maryland Heights, Missouri Esther Yap, BPharm, MD, Physician, Royal Children’s Hospital, Melbourne, Australia HOST Kilby Mann, MD, Assistant Professor, Pediatric Rehabilitation Medicine, Children's Hospital Colorado DATE Initial publication date: November 11, 2025. RESOURCES REFERENCED - American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 29th Annual Meeting, October 15-18, 2025, New Orleans, LA. https://www.aacpdm.org/events/2025/program - American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), www.aacpdm.org/ - AACPDM Complex Care Committee (www.aacpdm.org/about-us/committees/complex-care) TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/bgmft56r8ksk85qxbthvzs/CCJCP_AACPDM_Transcript_11-4-25‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Valencia F, Brunton L, Cassidy C, Gibb S, Prakash S, Pratt K, Wallace C, Yap E, Mann K. Practice-Changing Research in Complex Care at the AACPDM Annual Meeting 2025. 11/2025. OPENPediatrics. Online Podcast.‌ https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-at-the-aacpdm-annual-meeting-2025.
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Health & Fitness
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All content for OPENPediatrics is the property of OPENPediatrics and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
In this special Complex Care Journal Club podcast episode, host Dr. Kilby Mann interviews presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 79th Annual Meeting, October 15-18, 2025, in New Orleans, Louisiana. Speakers describe their study findings and implications for practice. Dr. Francisco Valencia also discusses the role of the Complex Care Committee and the profound impact of mentorship in the field of complex care. SPEAKERS Laura Brunton, PT, PhD, Associate Professor, School of Physical Therapy, Western University, London, Ontario, Canada Caitlin Cassidy, MD, Associate Professor, Department of Physical Medicine and the Department of Rehabilitation and Pediatrics, Western University, London, Ontario, Canada Susan Gibb, MBBS, FRACP, Medical Lead, Complex Care Hub, Royal Children’s Hospital, Melbourne, Australia Francisco Valencia, MD, Pediatric Orthopedic Surgeon, Children's Clinics For Rehabilitative Services, Tucson, Arizona Simran Prakash, BA, Medical Student, University of Miami Miller School of Medicine Karen Pratt, BA, MSc, PhD Candidate, Western University School of Health Sciences, London, Ontario, Canada Claire Wallace, PhD, Pediatric Psychologist, Ranken Jordan Pediatric Bridge Hospital, Maryland Heights, Missouri Esther Yap, BPharm, MD, Physician, Royal Children’s Hospital, Melbourne, Australia HOST Kilby Mann, MD, Assistant Professor, Pediatric Rehabilitation Medicine, Children's Hospital Colorado DATE Initial publication date: November 11, 2025. RESOURCES REFERENCED - American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 29th Annual Meeting, October 15-18, 2025, New Orleans, LA. https://www.aacpdm.org/events/2025/program - American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), www.aacpdm.org/ - AACPDM Complex Care Committee (www.aacpdm.org/about-us/committees/complex-care) TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/bgmft56r8ksk85qxbthvzs/CCJCP_AACPDM_Transcript_11-4-25‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Valencia F, Brunton L, Cassidy C, Gibb S, Prakash S, Pratt K, Wallace C, Yap E, Mann K. Practice-Changing Research in Complex Care at the AACPDM Annual Meeting 2025. 11/2025. OPENPediatrics. Online Podcast.‌ https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-at-the-aacpdm-annual-meeting-2025.
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Health & Fitness
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Families Face Ethical Challenges More Often Than They Change a G Tube: Rethinking Our Care
OPENPediatrics
27 minutes 29 seconds
4 months ago
Families Face Ethical Challenges More Often Than They Change a G Tube: Rethinking Our Care
In this Complex Care Journal Club podcast episode, Dr. Miriam Shapiro, Ms. Kate Detwiler, and Dr. Vanessa Madrigal discuss a survey of families with children with chronic conditions about ethical challenges they have experienced in their child's care and sources of support. They describe the residual distress reported by families, implications for clinical practice, and next steps from this work. SPEAKERS Miriam Shapiro, MD Associate Professor‌, Affiliate Faculty, and Pediatric Intensivist University of Minnesota Medical School University of Minnesota Center for Bioethics Masonic Children's Hospital Kathryn Detwiler, MBA Parent Advocate, Parent Researcher Program Manager, Complex Care Children's National Hospital Vanessa Madrigal, MD, MSCE, HEC-C Associate Professor, Director Pediatric Ethics Program, and Pediatric Critical Care Medicine The George Washington University Children's National Hospital HOST Kathleen Huth, MD, MMSc Pediatrician, Complex Care Service, Division of General Pediatrics Boston Children's Hospital Assistant Professor of Pediatrics Harvard Medical School DATE Initial publication date: July 7, 2025. JOURNAL CLUB ARTICLE Shapiro MC, Detwiler K, Shepard J, Bernhard T, Li X, Boss RD, Madrigal VN. Ethical Challenges in Pediatric Medical Complexity: A Survey of Parents. J Pediatr. 2025 Apr;279:114478. doi: 10.1016/j.jpeds.2025.114478. Epub 2025 Jan 27. PMID: 39864504; PMCID: PMC12013584. OTHER ARTICLES REFERENCED Cho HL, Grady C, Tarzian A, Povar G, Mangal J, Danis M. Patient and Family Descriptions of Ethical Concerns. Am J Bioeth. 2020 Jun;20(6):52-64. doi: 10.1080/15265161.2020.1754500. PMID: 32441594; PMCID: PMC7673656. Pang J, Batson L, Detwiler K, Miller ME, Thorndike D, Boss RD, Shapiro MC. Where do families turn? Ethical dilemmas in the care of chronically critically Ill children. Monash Bioeth Rev. 2024 Jul 8. doi: 10.1007/s40592-024-00201-6. Epub ahead of print. PMID: 38976209. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/p9cpbchs45rp3xq8p747pv83/July_CCJCP_Shapiro_Madrigal_Detwiler_Transcript_7-2-25‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Shapiro MC, Detwiler K, Madrigal VN, Huth K. Families Face Ethical Challenges More Often Than They Change a G Tube: Rethinking Our Care. 7/2025. OPENPediatrics. https://soundcloud.com/openpediatrics/families-face-ethical-challenges-more-often-than-they-change-a-g-tube-rethinking-our-care.
OPENPediatrics
In this special Complex Care Journal Club podcast episode, host Dr. Kilby Mann interviews presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 79th Annual Meeting, October 15-18, 2025, in New Orleans, Louisiana. Speakers describe their study findings and implications for practice. Dr. Francisco Valencia also discusses the role of the Complex Care Committee and the profound impact of mentorship in the field of complex care. SPEAKERS Laura Brunton, PT, PhD, Associate Professor, School of Physical Therapy, Western University, London, Ontario, Canada Caitlin Cassidy, MD, Associate Professor, Department of Physical Medicine and the Department of Rehabilitation and Pediatrics, Western University, London, Ontario, Canada Susan Gibb, MBBS, FRACP, Medical Lead, Complex Care Hub, Royal Children’s Hospital, Melbourne, Australia Francisco Valencia, MD, Pediatric Orthopedic Surgeon, Children's Clinics For Rehabilitative Services, Tucson, Arizona Simran Prakash, BA, Medical Student, University of Miami Miller School of Medicine Karen Pratt, BA, MSc, PhD Candidate, Western University School of Health Sciences, London, Ontario, Canada Claire Wallace, PhD, Pediatric Psychologist, Ranken Jordan Pediatric Bridge Hospital, Maryland Heights, Missouri Esther Yap, BPharm, MD, Physician, Royal Children’s Hospital, Melbourne, Australia HOST Kilby Mann, MD, Assistant Professor, Pediatric Rehabilitation Medicine, Children's Hospital Colorado DATE Initial publication date: November 11, 2025. RESOURCES REFERENCED - American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 29th Annual Meeting, October 15-18, 2025, New Orleans, LA. https://www.aacpdm.org/events/2025/program - American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), www.aacpdm.org/ - AACPDM Complex Care Committee (www.aacpdm.org/about-us/committees/complex-care) TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/bgmft56r8ksk85qxbthvzs/CCJCP_AACPDM_Transcript_11-4-25‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Valencia F, Brunton L, Cassidy C, Gibb S, Prakash S, Pratt K, Wallace C, Yap E, Mann K. Practice-Changing Research in Complex Care at the AACPDM Annual Meeting 2025. 11/2025. OPENPediatrics. Online Podcast.‌ https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-at-the-aacpdm-annual-meeting-2025.