Not Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis or who suffer from symptoms that they suspect to be caused by endometriosis. Every week, Teniola shares her own experiences, interviews health professionals and endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease.
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Not Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis or who suffer from symptoms that they suspect to be caused by endometriosis. Every week, Teniola shares her own experiences, interviews health professionals and endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease.
S4E3 - Endometriosis: Under-funded & Under-researched - A conversation with Endometriosis South Coast Advocate and Research Student, Jodie Hughes
Not Defined by Endo
31 minutes 4 seconds
4 years ago
S4E3 - Endometriosis: Under-funded & Under-researched - A conversation with Endometriosis South Coast Advocate and Research Student, Jodie Hughes
Welcome to today's episode of Not Defined by Endo Podcast!
Today’s episode is with Jodie Hughes, the founder of the charity Endometriosis South Coast in the UK, and a Ph.D. student studying how endometriosis differs in different sample groups of people. Jodie’s endometriosis story begins at the tender age of 11, and like many of us, she has had to navigate a behemoth healthcare system, advocating for herself and others and raising awareness about the disease.
Endometriosis is such a poorly-funded and poorly-researched disease, and Jodie is working hard to change this by devoting her life to studying the impact of Endo. For her undergraduate and master's studies, she researched the stress levels of patients with endometriosis and was able to obtain statistically significant results in both studies.
Apart from doing research on Endo, she also founded the all-inclusive charity called Endometriosis South Coast, supporting and educating those with endometriosis by running webinars and support groups.
Here is the link to Jodie's survey -
https://roehamptonuniversity.onlinesurveys.ac.uk/a-study-on-the-effects-of-location-ethnicity-and-care-app
Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.
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Till next time, remember, you are not defined by endo!
Not Defined by Endo
Not Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis or who suffer from symptoms that they suspect to be caused by endometriosis. Every week, Teniola shares her own experiences, interviews health professionals and endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease.
