Are you bendy, itchy, or dizzy all the time? You might be struggling to balance the trifecta of symptoms syndromes…

This research episode of The Neurodivergent Report features orthotics researcher Sam Silverman, along with the full @ndreportpod team! Together, we explore the interconnectedness of these often-overlooked chronic conditions and how they disproportionately affect neurodivergent people.

Curious what’s inside:

• Defining MCAS, POTS, and EDS in plain terms

• What the research says about comorbidity and prevalence (who even gets this?)

• The importance of coordinated and compassionate medical care teams

If it feels like your body just called it quits one day… YOU’RE NOT ALONE. This episode is for anyone who’s been dismissed, misdiagnosed, or just trying to get through the day in a body that won’t cooperate.

Let us know your thoughts @ndreportpod on the socials.

However you are able to engage, thanks for being here!

Love, Sarah 💜

📢 Connect with Us

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📚 Resources for more on this topic:

1. https://www.ehlers-danlos.com/

2. https://www.edsrf.org/

3. https://www.ehlers-danlos.com/heds-diagnostic-checklist/

4. https://www.ehlers-danlos.com/assessing-joint-hypermobility/

📚 Sam’s Research References:

1. Brittain et al. (2023). PT Interventions in G-HSD & hEDS. Disability & Rehabilitation. https://doi.org/10.1080/09638288.2023.2216028

2. Buckner (2014). EDS in acute rehab. J. Prosthetics & Orthotics.

3. Castori (2012). EDS-HT overview. ISRN Dermatology. https://doi.org/10.5402/2012/751768

4. Csecs et al. (2021). Hypermobility & dysautonomia comorbidity. Am J Med Genet C. https://doi.org/10.1002/ajmg.c.31957

5. Csecs & Iodice (2022). Neurodivergence & joint hypermobility. Front Psychiatry. https://doi.org/10.3389/fpsyt.2021.786916

6. Dupuy et al. (2017). Somatosensory orthoses & balance. Front Hum Neurosci. https://doi.org/10.3389/fnhum.2017.00283

7. Halverson et al. (2023). Misdiagnosis & diagnostic delay in hEDS. Genet Med Open. https://doi.org/10.1016/j.gimo.2023.100812

8. Higo et al. (2023). Fabric orthoses case report. Clin Case Rep. https://doi.org/10.1002/ccr3.6821

9. Hsieh et al. (2019). Arch support for kids w/ flatfoot. LWW Journals. Link

10. Jensen et al. (2020). Finger orthoses & function. Sage Journals. https://doi.org/10.1177/0309364620956866

11. Lusardi et al. (2012). Orthotics & Prosthetics in Rehab (3rd ed). Saunders.

12. Pandey et al. (2021). Movement disorders & MSK overlap. Mov Disord Clin Pract. https://doi.org/10.1002/mdc3.13390

13. Russek (2022). Cervical instability in hEDS. JOSPT. https://www.jospt.org/do/10.2519/jospt.blog.20230917

14. Snowdon & Dadla (2023). Allied health views on fabric orthoses. Int J Ther Rehabil. https://doi.org/10.12968/ijtr.2022.0148

🔑 Keywords:#Neurodivergent #HypermobileEDS #POTS #MCAS #ChronicIllness #Neurodivergence #InvisibleDisabilities #ADHD #Autism #MentalHealth #MedicalGaslighting #SupportSystems #Neurospicy #SelfAdvocacy #IntersectionalHealth #HormonalHealth #WomenInMedicine #NDreportpod #ResearchPodcast