In this episode, Jen Joly speaks with Liz Poe, co-founder of The Lady Josephine Foundation, as they explore the layered and deeply human experience of raising a child with Pulmonary Vein Stenosis (PVS). Jen and Liz discuss the emotional and logistical upheavals of traveling for care, the heartbreak of missing life milestones, navigating developmental therapies, and much more.

As a mother of four, Liz reflects on the everyday tension of being present for all her children — and the intentional ways she and her husband, Ben, kept their family connected, building meaningful bonds for both their PVS warrior and her siblings.

Together, Jen and Liz talk about embracing their own version of “normal” and how building community remains central to Liz and Ben’s mission with The PVS Warriors Foundation, formerly The Lady Josephine Foundation.