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Navigating PVS
Jen Joly
7 episodes
4 days ago
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
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Documentary
Society & Culture
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All content for Navigating PVS is the property of Jen Joly and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
Show more...
Documentary
Society & Culture
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Careers, Caregiving & Community: Parenting Through PVS
Navigating PVS
58 minutes 19 seconds
6 months ago
Careers, Caregiving & Community: Parenting Through PVS

In this episode, host Jen Joly talks with fellow working mom Lindsay Hughes about the extraordinary journey of raising a child with Pulmonary Vein Stenosis. The conversation traces Lindsay’s path from her daughter's premature birth at just 24 weeks (and her own traumatic preeclampsia experience) through life in the NICU, ongoing medical crises, and the realities of long-term caregiving.

Together, Jen and Lindsay explore the emotional highs and lows of parenting a medically complex child—while also managing demanding careers. They discuss the importance of flexible employers, the role of state insurance, and the quiet strength it takes to juggle it all. With personal insights from both women, this episode is a powerful testament to resilience, advocacy, and the support that comes from shared experience.

Navigating PVS
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.