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Navigating PVS
Jen Joly
7 episodes
4 days ago
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
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Documentary
Society & Culture
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All content for Navigating PVS is the property of Jen Joly and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
Show more...
Documentary
Society & Culture
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Across the Pond: Two Moms, Same Fight Against PVS
Navigating PVS
49 minutes 49 seconds
8 months ago
Across the Pond: Two Moms, Same Fight Against PVS

In this episode, host Jen Joly is joined by U.K.-based PVS Mom, Mischa Hand. Jen and Mischa share their heartfelt journeys as mothers navigating the complexities of their daughters' pulmonary vein stenosis (PVS). Despite living in different countries, their experiences highlight the universal challenges of advocating for their children's care, from securing access to specialized treatment to balancing the emotional and logistical hurdles along the way.

Through candid conversations about the U.S. and U.K. healthcare systems, they explore how advocacy transcends borders, connecting families in a shared mission to provide the best possible outcomes for their children. This episode offers insights, hope, and solidarity to parents facing similar paths.

Navigating PVS
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.