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Navigating Life with Vision Loss
Aftersight
131 episodes
1 day ago
In this episode of Navigating Life with Vision Loss, host Kim Wardlow welcomes Michael Hingson, Chief Vision Officer at AccessiBe, National Ambassador for the National Federation of the Blind’s Braille Literacy Campaign, and author of Thunder Dog and Live Like a Guide Dog. The conversation explores safety and self-advocacy in healthcare settings for people who are blind or have low vision. Michael shares personal stories, including a recent hospital experience that highlights gaps in staff understanding of blindness, and offers strategies for educating providers, asserting one’s needs, and ensuring safety in medical environments. He emphasizes the importance of confidence, self-advocacy, and continuous education—both for blind individuals and for medical professionals. Michael also discusses accessible technology in healthcare, from Kaiser Permanente’s app and medication labeling systems to tools like Envision labels and Braille organization strategies. He stresses that blindness itself is not the problem—societal attitudes and lack of awareness are. The episode closes with practical advice: ask questions, advocate for confidentiality, and remember that learning blindness skills through organizations like the Colorado Center for the Blind and NFB can empower independence and safety. Contact Info Guest: Michael Hingson Chief Vision Officer, AccessiBe Email: speaker@michaelhingson.com Website: www.michaelhingson.com Books: Thunder Dog, Live Like a Guide Dog, Running with Roselle Aftersight Contact: Email: feedback@aftersight.org Phone: (720) 712-8856 Website: www.aftersight.org Producer: Jonathan Price, Podcast and Program Producer, Aftersight Show Credits Host: Kim Wardlow Guest: Michael Hingson Producer: Jonathan Price An Aftersight Original Podcast Chapter Markers 00:00 — Intro: Navigating Life with Vision Loss 00:25 — Meet Guest Michael Hingson 02:53 — Understanding Barriers in Healthcare Settings 07:30 — Advocating for Yourself in Medical Situations 09:53 — Dealing with Misunderstanding and Bias 11:57 — The Art of Self-Advocacy Without Conflict 13:32 — Communicating with New Providers 15:54 — Knowing and Defending Your Rights 19:06 — Accessible Health Tech and Kaiser Permanente 21:31 — Labeling Medication and Accessibility Tools 23:24 — Adapting to Vision Loss Later in Life 26:38 — Blindness as Perception, Not Limitation 28:50 — Changing Medical Education on Disability Awareness 31:15 — The Importance of Inclusion and Communication 31:32 — Final Advice: Confidence, Questions, and Community 33:19 — Closing and Resources
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In this episode of Navigating Life with Vision Loss, host Kim Wardlow welcomes Michael Hingson, Chief Vision Officer at AccessiBe, National Ambassador for the National Federation of the Blind’s Braille Literacy Campaign, and author of Thunder Dog and Live Like a Guide Dog. The conversation explores safety and self-advocacy in healthcare settings for people who are blind or have low vision. Michael shares personal stories, including a recent hospital experience that highlights gaps in staff understanding of blindness, and offers strategies for educating providers, asserting one’s needs, and ensuring safety in medical environments. He emphasizes the importance of confidence, self-advocacy, and continuous education—both for blind individuals and for medical professionals. Michael also discusses accessible technology in healthcare, from Kaiser Permanente’s app and medication labeling systems to tools like Envision labels and Braille organization strategies. He stresses that blindness itself is not the problem—societal attitudes and lack of awareness are. The episode closes with practical advice: ask questions, advocate for confidentiality, and remember that learning blindness skills through organizations like the Colorado Center for the Blind and NFB can empower independence and safety. Contact Info Guest: Michael Hingson Chief Vision Officer, AccessiBe Email: speaker@michaelhingson.com Website: www.michaelhingson.com Books: Thunder Dog, Live Like a Guide Dog, Running with Roselle Aftersight Contact: Email: feedback@aftersight.org Phone: (720) 712-8856 Website: www.aftersight.org Producer: Jonathan Price, Podcast and Program Producer, Aftersight Show Credits Host: Kim Wardlow Guest: Michael Hingson Producer: Jonathan Price An Aftersight Original Podcast Chapter Markers 00:00 — Intro: Navigating Life with Vision Loss 00:25 — Meet Guest Michael Hingson 02:53 — Understanding Barriers in Healthcare Settings 07:30 — Advocating for Yourself in Medical Situations 09:53 — Dealing with Misunderstanding and Bias 11:57 — The Art of Self-Advocacy Without Conflict 13:32 — Communicating with New Providers 15:54 — Knowing and Defending Your Rights 19:06 — Accessible Health Tech and Kaiser Permanente 21:31 — Labeling Medication and Accessibility Tools 23:24 — Adapting to Vision Loss Later in Life 26:38 — Blindness as Perception, Not Limitation 28:50 — Changing Medical Education on Disability Awareness 31:15 — The Importance of Inclusion and Communication 31:32 — Final Advice: Confidence, Questions, and Community 33:19 — Closing and Resources
Show more...
Non-Profit
Personal Journals,
Education,
Business,
Society & Culture,
How To,
Self-Improvement,
Courses,
Health & Fitness,
Documentary,
Relationships
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S108: Family Advocacy
Navigating Life with Vision Loss
39 minutes
6 months ago
S108: Family Advocacy
In this heartfelt and informative episode, Kim Wardlow welcomes therapist and advocate Darran Zenger to explore the dynamics of family advocacy in the blind and low-vision community. Drawing from both professional expertise and personal experience living with Usher Syndrome, Darran dives into what it means to advocate for and within your family. From setting expectations and communicating evolving needs to building support systems and navigating shifting family roles, Darran offers practical strategies and emotional wisdom. The conversation also explores the emotional side of disability, the importance of peer connection, and the value of mental health support for both individuals and families. 🕰️ Chapter Markers: 00:00 – Welcome & Intro to the Advocacy Series 01:20 – Meet Darran Zenger: Therapist and Advocate 03:45 – Defining Family Advocacy in Context 06:00 – Communication & Self-Advocacy Within the Family 08:05 – Common Family Challenges and Emotional Struggles 10:15 – Advocating for Inclusion in Everyday Life 12:30 – Teaching Children Advocacy Through Lived Example 14:35 – Balancing Support and Independence 17:00 – Advocacy Through Layout, Routine & Environment 19:00 – Empathy, Listening, and Perspective Shifts 22:50 – Adapting to Progressive Vision Loss Over Time 25:00 – Humor and Honesty in Self-Advocacy 27:30 – Tools, Training, and Support for Families 29:45 – Guide Dogs, Children, and Trust 31:45 – Educating Without Exhaustion 33:50 – Mental Health and the Need for Connection 36:55 – Final Thoughts and Resources 📬 Contact Information: 📧 Email: contact@aftersight.org 🌐 Website: www.aftersight.org
Navigating Life with Vision Loss
In this episode of Navigating Life with Vision Loss, host Kim Wardlow welcomes Michael Hingson, Chief Vision Officer at AccessiBe, National Ambassador for the National Federation of the Blind’s Braille Literacy Campaign, and author of Thunder Dog and Live Like a Guide Dog. The conversation explores safety and self-advocacy in healthcare settings for people who are blind or have low vision. Michael shares personal stories, including a recent hospital experience that highlights gaps in staff understanding of blindness, and offers strategies for educating providers, asserting one’s needs, and ensuring safety in medical environments. He emphasizes the importance of confidence, self-advocacy, and continuous education—both for blind individuals and for medical professionals. Michael also discusses accessible technology in healthcare, from Kaiser Permanente’s app and medication labeling systems to tools like Envision labels and Braille organization strategies. He stresses that blindness itself is not the problem—societal attitudes and lack of awareness are. The episode closes with practical advice: ask questions, advocate for confidentiality, and remember that learning blindness skills through organizations like the Colorado Center for the Blind and NFB can empower independence and safety. Contact Info Guest: Michael Hingson Chief Vision Officer, AccessiBe Email: speaker@michaelhingson.com Website: www.michaelhingson.com Books: Thunder Dog, Live Like a Guide Dog, Running with Roselle Aftersight Contact: Email: feedback@aftersight.org Phone: (720) 712-8856 Website: www.aftersight.org Producer: Jonathan Price, Podcast and Program Producer, Aftersight Show Credits Host: Kim Wardlow Guest: Michael Hingson Producer: Jonathan Price An Aftersight Original Podcast Chapter Markers 00:00 — Intro: Navigating Life with Vision Loss 00:25 — Meet Guest Michael Hingson 02:53 — Understanding Barriers in Healthcare Settings 07:30 — Advocating for Yourself in Medical Situations 09:53 — Dealing with Misunderstanding and Bias 11:57 — The Art of Self-Advocacy Without Conflict 13:32 — Communicating with New Providers 15:54 — Knowing and Defending Your Rights 19:06 — Accessible Health Tech and Kaiser Permanente 21:31 — Labeling Medication and Accessibility Tools 23:24 — Adapting to Vision Loss Later in Life 26:38 — Blindness as Perception, Not Limitation 28:50 — Changing Medical Education on Disability Awareness 31:15 — The Importance of Inclusion and Communication 31:32 — Final Advice: Confidence, Questions, and Community 33:19 — Closing and Resources