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National MPS Society: Our Voices
National MPS Society
17 episodes
1 month ago
We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys. The National MPS Society exists to cure, support and advocate for MPS and ML.
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Personal Journals
Society & Culture
RSS
All content for National MPS Society: Our Voices is the property of National MPS Society and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys. The National MPS Society exists to cure, support and advocate for MPS and ML.
Show more...
Personal Journals
Society & Culture
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Saving Ryan with Dr. Emil Kakkis and Ryan Dant
National MPS Society: Our Voices
31 minutes
3 years ago
Saving Ryan with Dr. Emil Kakkis and Ryan Dant
This is the second episode of the National MPS Society's Podcast: Our Voices with host, Stephanie Cozine. Join us as we talk to Dr. Emil Kakkis and Ryan Dant about the trials and tribulations of drug development. We share a story of a passionate doctor racing to bring treatment to patients, like Ryan, that will alter the course of those living with MPS I.
National MPS Society: Our Voices
We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys. The National MPS Society exists to cure, support and advocate for MPS and ML.