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National MPS Society: Our Voices
National MPS Society
17 episodes
1 month ago
We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys. The National MPS Society exists to cure, support and advocate for MPS and ML.
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Personal Journals
Society & Culture
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All content for National MPS Society: Our Voices is the property of National MPS Society and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys. The National MPS Society exists to cure, support and advocate for MPS and ML.
Show more...
Personal Journals
Society & Culture
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Newborn Screening Advocacy with Dr. Mike Hu
National MPS Society: Our Voices
39 minutes
3 years ago
Newborn Screening Advocacy with Dr. Mike Hu
We talk to Dr. Mike Hu, PhD about newborn screening advocacy on a federal and state level. Mike shares with us how his educational background with molecular genetics collides with his personal life, when two of three of his sons were diagnosed with MPS II, Hunter Syndrome.
National MPS Society: Our Voices
We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys. The National MPS Society exists to cure, support and advocate for MPS and ML.