Teens promoting their "Cure FSHD for All" initiative, podcast part 1

https://is1-ssl.mzstatic.com/image/thumb/Podcasts126/v4/fb/22/6e/fb226e19-eefb-a965-c00c-669e7d76ec65/mza_14782204608570097893.jpg/600x600bb.jpg

MyFSHD

Peter L Jones, PhD

106 episodes

1 week ago

MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.

Non-Profit

Business

RSS

All content for MyFSHD is the property of Peter L Jones, PhD and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Non-Profit

Business

https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_episode/22295197/22295197-1753675149911-9eda7cb27a97a.jpg

Teens promoting their "Cure FSHD for All" initiative, podcast part 1

MyFSHD

1 hour 19 minutes 15 seconds

3 months ago

Teens promoting their "Cure FSHD for All" initiative, podcast part 1

"And that would tell you what is obvious right now? That avoiding apple skins and pizza has no effect on this brutal disease?" Today we discuss the Cure FSHD for All (go to: www.curefshdforall.com) initiative for inclusion of FSHDers under 18 and those with limited mobility into clinical trials and for access to developing therapies.