Introduction to the Pod

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Mind Over MRKH

The MRKH podcast

19 episodes

1 week ago

THE MRKH PODCAST Mayer Rokitanksy Küster Hauser Syndrome Bought to you by Ellamae, founder and director of Va Va Womb and MindOverMRKH.org for the MRKH community, by the MRKH community. MRKH is a congenital condition that 1 in 5000 female babies are born with. This podcast is about ALL THINGS MRKH, the people that live with it, the experts that can help us understand our bodies more. Think worldwide MRKH voices. Expect real, honest, raw content with plenty of resources and regular unique episodes! This is a podcast for the community, by the community. Sponsorship: MRKH Connect

Self-Improvement

Education

RSS

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Self-Improvement

Education

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Introduction to the Pod

Mind Over MRKH

3 minutes 6 seconds

3 years ago

Introduction to the Pod

Welcome to the MRKH Podcast, Mind Over MRKH. MRKH affects 1 in 5000 female births, listen in to learn, connect, and be comforted by the MRKH warriors and community supporters we'll be joined by. We are a creative, resourceful, story telling and self explorative hub for all things Mayer Rokitansky Küster Hauser Syndrome. Those with this condition have varying underdevelopment of the reproductive system. So born without or with an underdeveloped womb, cervix and vagina, usually ovaries are present and female chromosomes. (But doesn't mean to say everyone with MRKH identifies as a woman)

I'm Ellamae, I'm 29 and I was diagnosed with MRKH at 16. I am the founder and director of Va Va Womb (even though I was born without a womb) and Mind Over MRKH, I am your Podcast Host and producer - joined by MRKH warriors, friends and experts globally- to tell their stories, have their voice heard and ensure the next person diagnosed with MRKH feels less alone in their experiences. We'll be talking all things MRKH from mental health, to dealing with this new diagnosis, sex, relationships, fertility, living child free or child less, pleasure, self acceptance, vaginal dilating and more. Find out ways you can support the work we do over on mindovermrkh.org including our future magazine, creative events, gift boxes for MRKHers that we aim to package for the next person being diagnosed and check out our online shop too!

This Podcast is receiving regular sponsorship to keep us going strong from our wonderful friends and U.K. Charity MRKH Connect, MRKH Connect is a UK charity designed to connect those with MRKH and provide support them and their families through events, resources and public outreach to raise awareness. Their private Members area provides a safe space for those with MRKH from all over the world to connect and share together in a safe environment and find comfort talking with those who truly understand what having MRKH is like.

We hope as one big MRKH Family to continue to raise funds collectively to support those diagnosed with this life changing condition that can bring so much pain and so much grief, - we just want you to know that it will also come with a fiercely magical, loyal and loving community of people just like you - you are not alone. We hope this podcast keeps you company. and if you'd like to get involved do get in touch because your story matters.